Faculty and Fellow Publications on Social Determinants of Health, Diversity, Equity, and Inclusion

  1. "It's a lot of things": household material hardship among Black and Hispanic parents of children with cancer.   
    Valenzuela A, Hawkins A, Revette A, Chen L, Xiong N, Mazzola E, Eche IJ, Karvonen K, Snaman JM, Wolfe J, Bona K, Umaretiya PJ.  
    Pediatr Blood Cancer. 2023 Jun 13:e30485. doi: 10.1002/pbc.30485. Online ahead of print.  
    PMID: 37312643
  2. Disparities in parental distress in a multicenter clinical trial for pediatric acute lymphoblastic leukemia.    
    Umaretiya PJ, Koch VB, Flamand Y, Aziz-Bose R, Ilcisin L, Valenzuela A, Cole PD, Gennarini LM, Kahn JM, Kelly KM, Tran TH, Michon B, Welch JJG, Wolfe J, Silverman LB, Bona K.  
    J Natl Cancer Inst. 2023 Jun 1:djad099. doi: 10.1093/jnci/djad099. Online ahead of print.  
    PMID: 37261858
  3. Racial and ethnic disparities in childhood and young adult acute lymphocytic leukaemia: secondary analyses of eight Children's Oncology Group cohort trials.   
    Gupta S, Dai Y, Chen Z, Winestone LE, Teachey DT, Bona K, Aplenc R, Rabin KR, Zweidler-McKay P, Carroll AJ, Heerema NA, Gastier-Foster J, Borowitz MJ, Wood BL, Maloney KW, Mattano LA Jr, Larsen EC, Angiolillo AL, Burke MJ, Salzer WL, Winter SS, Brown PA, Guest EM, Dunsmore KP, Kairalla JA, Winick NJ, Carroll WL, Raetz EA, Hunger SP, Loh ML, Devidas M.  
    Lancet Haematol. 2023 Feb;10(2):e129-e141. doi: 10.1016/S2352-3026(22)00371-4.  
    PMID: 36725118
  4. Impact of poverty and neighborhood opportunity on outcomes for children treated with CD19-directed CAR T-cell therapy.   
    Newman H, Li Y, Liu H, Myers RM, Tam V, DiNofia A, Wray L, Rheingold SR, Callahan C, White C, Baniewicz D, Winestone LE, Kadauke S, Diorio C, June CH, Getz KD, Aplenc R, Teachey DT, Maude SL, Grupp SA, Bona K, Leahy AB.  
    Blood. 2023 Feb 9;141(6):609-619. doi: 10.1182/blood.2022017866.  
    PMID: 36351239
  5. Identifying contributors to disparities in patient access of online medical records: examining the role of clinician encouragement.  
    Sisk BA, Lin S, Balls-Berry JJE, Servin AE, Mack JW.  
    JAMIA Open. 2023 Jul 7;6(3):ooad049. doi: 10.1093/jamiaopen/ooad049. eCollection 2023 Oct.  
    PMID: 37425488 Free PMC article.
  6. Diversity, equity, and inclusion: moving from ambition to action.  
    Archer NM.  
    Pediatr Blood Cancer. 2023 Apr;70(4):e30197. doi: 10.1002/pbc.30197. Epub 2023 Jan 18.  
    PMID: 36651689 No abstract available.
  7. Feasibility of oncology clinical trial-embedded evaluation of social determinants of health.  
    Aziz-Bose R, Zheng DJ, Umaretiya PJ, Ilcisin L, Stevenson K, Koch V, Valenzuela A, Cole PD, Gennarini LM, Kahn JM, Kelly KM, Tran TH, Michon B, Welch JJG, Silverman LB, Wolfe J, Bona K.  
    Pediatr Blood Cancer. 2022 Nov;69(11):e29933. doi: 10.1002/pbc.29933. Epub 2022 Sep 7.  
    PMID: 36069432
  8. A structural racism framework to guide health equity interventions in pediatric oncology.    
    Umaretiya PJ, Vinci RJ, Bona K.   
    Pediatrics. 2022 May 1;149(5):e2021054634. doi: 10.1542/peds.2021-054634.   
    PMID: 35490282 No abstract available.
  9. Achieving global pediatric palliative care equity—what we have yet to learn.    
    Umaretiya PJ, Wolfe J.   
    JAMA Netw Open. 2022 Mar 1;5(3):e221253. doi: 10.1001/jamanetworkopen.2022.1253.   
    PMID: 35258584 No abstract available.
  10. Disparities in pediatric psychosocial oncology utilization.    
    Zheng DJ, Umaretiya PJ, Schwartz ER, Al-Sayegh H, Raphael JL, van Litsenburg RRL, Ma C, Muriel AC, Bona K.   
    Pediatr Blood Cancer. 2021 Nov;68(11):e29342. doi: 10.1002/pbc.29342. Epub 2021 Sep 14.   
    PMID: 34519425
  11. Rationale and design of Children's Oncology Group (COG) study ACCL20N1CD: financial distress during treatment of acute lymphoblastic leukemia in the United States.    
    Beauchemin M, Santacroce SJ, Bona K, Dang H, Alexander S, Allen K, De Los Santos C, Fisher B, Muñeton-Castaño Y, Ponce O, Vargas S, Sugalski A, Sung L, Parsons S.   
    BMC Health Serv Res. 2022 Jun 28;22(1):832. doi: 10.1186/s12913-022-08201-0.   
    PMID: 35764995 Free PMC article.
  12. Enablers and barriers to newborn screening for sickle cell disease in Africa: results from a qualitative study involving programmes in six countries.    
    Archer NM, Inusa B, Makani J, Nkya S, Tshilolo L, Tubman VN, McGann PT, Ambrose EE, Henrich N, Spector J, Ohene-Frempong K.   
    BMJ Open. 2022 Mar 9;12(3):e057623. doi: 10.1136/bmjopen-2021-057623.   
    PMID: 35264367 Free PMC article.
  13. A seat at the table: a perspective on participation of Black individuals in clinical trials.    
    Edwards JG, Archer NM.   
    Pediatr Blood Cancer. 2022 May;69(5):e29617. doi: 10.1002/pbc.29617. Epub 2022 Feb 23.   
    PMID: 35195931 No abstract available.
  14. Health literacy and clinical outcomes following hematopoietic stem-cell transplantation.    
    Bezler NS, Ilowite M, London WB, Pei-Chi K, Joffe S, Mack JW.   
    JCO Oncol Pract. 2022 Jun;18(6):e857-e868. doi: 10.1200/OP.21.00049. Epub 2022 Jan 21.   
    PMID: 35061512
  15. Missing voices: lessons learned from nonparticipating caregivers in palliative care research.    
    Umaretiya PJ, Ilowite M, Fisher L, Bakitas M, Currie ER, Gilbertson-White S, Lindley L, Roeland EJ, Mack JW, Bona K.   
    J Palliat Med. 2022 Mar;25(3):455-460. doi: 10.1089/jpm.2021.0433. Epub 2022 Jan 4.   
    PMID: 34981972
  16. A framework for promoting diversity, equity, and inclusion in genetics and genomics research.    
    Rebbeck TR, Bridges JFP, Mack JW, Gray SW, Trent JM, George S, Crossnohere NL, Paskett ED, Painter CA, Wagle N, Kano M, Nez Henderson P, Henderson JA, Mishra SI, Willman CL, Sussman AL.   
    JAMA Health Forum. 2022 Apr;3(4):e220603. doi: 10.1001/jamahealthforum.2022.0603. Epub 2022 Apr 15.   
    PMID: 35755401 Free PMC article.
  17. Racial and ethnic disparities in communication study enrollment for young people with cancer: a descriptive analysis of the literature.    
    Sisk BA, Keenan M, Goodman MS, Servin AE, Yaeger LH, Mack JW, DuBois JM.   
    Patient Educ Couns. 2022 Jul;105(7):2067-2073. doi: 10.1016/j.pec.2021.12.016. Epub 2021 Dec 30.   
    PMID: 34991915 Free PMC article.
  18. Race, ethnicity, and goal-concordance of end-of-life palliative care in pediatric oncology.   
    Umaretiya PJ, Li A, McGovern A, Ma C, Wolfe J, Bona K.   
    Cancer. 2021 Jul 13. doi: 10.1002/cncr.33768. Online ahead of print.   
    PMID: 34255377
  19. PediCARE: development of a poverty-targeted intervention for pediatric cancer.   
    Umaretiya PJ, Revette A, Seo A, Flamand Y, Ilcisin L, Zheng DJ, Bhatia S, Wolfe J, Bona K.   
    Pediatr Blood Cancer. 2021 Jun 30:e29195. doi: 10.1002/pbc.29195. Online ahead of print.   
    PMID: 34190405
  20. Disparities in pediatric oncology: the 21st century opportunity to improve outcomes for children and adolescents with cancer.   
    Aristizabal P, Winestone LE, Umaretiya P, Bona K.   
    Am Soc Clin Oncol Educ Book. 2021 Jun;41:e315-e326. doi: 10.1200/EDBK_320499.   
    PMID: 34061564
  21. Learning to listen: a plea to our profession.   
    Umaretiya PJ, Tsai JW.   
    Pediatr Blood Cancer. 2021 Aug;68(8):e29150. doi: 10.1002/pbc.29150. Epub 2021 Jun 1.   
    PMID: 34061423; No abstract available.
  22. Socioeconomic disparities in survival after high-risk neuroblastoma treatment with modern therapy.   
    Zheng DJ, Li A, Ma C, Ribeiro KB, Diller L, Bona K, Marron JM.   
    Pediatr Blood Cancer. 2021 May 22:e29127. doi: 10.1002/pbc.29127. Online ahead of print.   
    PMID: 34022098
  23. Poverty and targeted immunotherapy: survival in Children's Oncology Group clinical trials for high-risk neuroblastoma.   
    Bona K, Li Y, Winestone LE, Getz KD, Huang YS, Fisher BT, Desai AV, Richardson T, Hall M, Naranjo A, Henderson TO, Aplenc R, Bagatell R.   
    J Natl Cancer Inst. 2021 Mar 1;113(3):282-291. doi: 10.1093/jnci/djaa107.   
    PMID: 33227816
  24. Neighborhood poverty and pediatric allogeneic hematopoietic cell transplantation outcomes: a CIBMTR analysis.   
    Bona K, Brazauskas R, He N, Lehmann L, Abdel-Azim H, Ahmed IA, Al-Homsi AS, Aljurf M, Arnold SD, Badawy SM, Battiwalla M, Beattie S, Bhatt NS, Dalal J, Dandoy CE, Diaz MA, Frangoul HA, Freytes CO, Ganguly S, George B, Gomez-Almaguer D, Hahn T, Kamble RT, Knight JM, LeMaistre CF, Law J, Lazarus HM, Majhail NS, Olsson RF, Preussler J, Savani BN, Schears R, Seo S, Sharma A, Srivastava A, Steinberg A, Szwajcer D, Wirk B, Yoshimi A, Khera N, Wood WA, Hashmi S, Duncan CN, Saber W.   
    Blood. 2021 Jan 28;137(4):556-568. doi: 10.1182/blood.2020006252.   
    PMID:33104215
  25. Creating an international network for science and clinical progress: democratizing dissemination of advances in global hematology.   
    Kean LS.   
    Blood Adv. 2021 Jan 12;5(1):275-276. doi: 10.1182/bloodadvances.2020004108.   
    PMID: 33570652; free PMC article; no abstract available.
  26. End the pain: start with antiracism.   
    Rosanwo TO, Kean LS, Archer NM.   
    Am J Hematol. 2021 Jan;96(1):4-6. doi: 10.1002/ajh.26032. Epub 2020 Nov 11.   
    PMID: 33085798; no abstract available.
  27. Race disparities in proton radiotherapy use for cancer treatment in patients enrolled in Children's Oncology Group trials.   
    Bitterman DS, Bona K, Laurie F, Kao PC, Terezakis SA, London WB, Haas-Kogan DA.   
    JAMA Oncol. 2020 Sep 1;6(9):1465-1468. doi: 10.1001/jamaoncol.2020.2259.   
    PMID: 32910158
  28. Racial and ethnic differences in communication and care for children with advanced cancer.   
    Mack JW, Uno H, Twist CJ, Bagatell R, Rosenberg AR, Marachelian A, Granger MM, Glade Bender J, Baker JN, Park JR, Cohn SL, Fernandez JH, Diller LR, Shusterman S.   
    J Pain Symptom Manage. 2020 Oct;60(4):782-789. doi: 10.1016/j.jpainsymman.2020.04.020. Epub 2020 Apr 30.   
    PMID: 32360991; free PMC article.
  29. Addressing implicit bias in pediatric hematology-oncology.   
    Tsai JW, Kesselheim JC.   
    Pediatr Blood Cancer. 2020 May;67(5):e28204. doi: 10.1002/pbc.28204. Epub 2020 Mar 11.   
    PMID: 32159300; review.
  30. End-of-life care among adolescent and young adult patients with cancer living in poverty.   
    Roeland EJ, Lindley LC, Gilbertson-White S, Saeidzadeh S, Currie ER, Friedman S, Bakitas M, Mack JW.   
    Cancer. 2020 Feb 15;126(4):886-893. doi: 10.1002/cncr.32609. Epub 2019 Nov 14.   
    PMID:31724747; free PMC article.
  31. Examining key sociodemographic characteristics of adolescents and young adults with cancer: a post hoc analysis of the promoting resilience in stress management randomized clinical trial.   
    Lau N, Bradford MC, Steineck A, Scott S, Bona K, Yi-Frazier JP, McCauley E, Rosenberg AR.   
    Palliat Med. 2020 Mar;34(3):336-348. doi: 10.1177/0269216319886215. Epub 2019 Nov 4.   
    PMID: 31680625  free PMC article; clinical trial.
  32. Racial and ethnic differences in parental decision-making roles in pediatric oncology.   
    Sisk BA, Kang TI, Mack JW.   
    J Palliat Med. 2020 Feb;23(2):192-197. doi: 10.1089/jpm.2019.0178. Epub 2019 Aug 13.   
    PMID: 31408409; free PMC article.
  33. Impact of race and ethnicity on end-of-life experiences for children with cancer.   
    Kaye EC, Gushue CA, DeMarsh S, Jerkins J, Li C, Lu Z, Snaman JM, Blazin L, Johnson LM, Levine DR, Morrison RR, Baker JN.   
    Am J Hosp Palliat Care. 2019 Sep;36(9):767-774. doi: 10.1177/1049909119836939. Epub 2019 Mar 13.   
    PMID: 30866645
  34. The relationship between household income and patient-reported symptom distress and quality of life in children with advanced cancer: a report from the PediQUEST study.   
    Ilowite MF, Al-Sayegh H, Ma C, Dussel V, Rosenberg AR, Feudtner C, Kang TI, Wolfe J, Bona K.   
    Cancer. 2018 Oct 1;124(19):3934-3941. doi: 10.1002/cncr.31668. Epub 2018 Sep 14.   
    PMID: 30216416; free PMC article.
  35. What we did not learn from an exploratory analysis of economic hardship in newly diagnosed adolescents and young adults with cancer.   
    Lau N, Bona K, Steineck A, Rosenberg AR.   
    Pediatr Blood Cancer. 2018 Dec;65(12):e27411. doi: 10.1002/pbc.27411. Epub 2018 Aug 28.   
    PMID: 30155981; free PMC article; no abstract available.
  36. Closing the gap on pediatric palliative oncology disparities.   
    Currie ER, McPeters SL, Mack JW.   
    Semin Oncol Nurs. 2018 Aug;34(3):294-302. doi: 10.1016/j.soncn.2018.06.010. Epub 2018 Aug 10.   
    PMID: 30100370; review.
  37. Feasibility of systematic poverty screening in a pediatric oncology referral center.   
    Zheng DJ, Shyr D, Ma C, Muriel AC, Wolfe J, Bona K.   
    Pediatr Blood Cancer. 2018 Dec;65(12):e27380. doi: 10.1002/pbc.27380. Epub 2018 Aug 1.   
    PMID: 30069999; free PMC article.
  38. An overview of disparities in childhood cancer: report on the Inaugural Symposium on Childhood Cancer Health Disparities, Houston, Texas, 2016.   
    Scheurer ME, Lupo PJ, Schüz J, Spector LG, Wiemels JL, Aplenc R, Gramatges MM, Schiffman JD, Pombo-de-Oliveira MS, Yang JJ, Heck JE, Metayer C, Orjuela-Grimm MA, Bona K, Aristizabal P, Austin MT, Rabin KR, Russell HV, Poplack DG.   
    Pediatr Hematol Oncol. 2018 Mar;35(2):95-110. doi: 10.1080/08880018.2018.1464088. Epub 2018 May 8.   
    PMID: 29737912; free PMC article.
  39. Disparities in pediatric palliative care: an opportunity to strive for equity.   
    Bona K, Wolfe J.   
    Pediatrics. 2017 Oct;140(4):e20171662. doi: 10.1542/peds.2017-1662.   
    PMID: 28963113; free PMC article; no abstract available.
  40. Household material hardship in families of children post-chemotherapy.   
    Bilodeau M, Ma C, Al-Sayegh H, Wolfe J, Bona K.   
    Pediatr Blood Cancer. 2018 Jan;65(1):10.1002/pbc.26743. doi: 10.1002/pbc.26743. Epub 2017 Sep 20.   
    PMID: 28941160; free PMC article; clinical trial.
  41. Disparities in prognosis communication among parents of children with cancer: the impact of race and ethnicity.   
    Ilowite MF, Cronin AM, Kang TI, Mack JW.   
    Cancer. 2017 Oct 15;123(20):3995-4003. doi: 10.1002/cncr.30960. Epub 2017 Sep 5.   
    PMID: 28873224
  42. Financial hardship and patient-reported outcomes after hematopoietic cell transplantation.   
    Abel GA, Albelda R, Khera N, Hahn T, Salas Coronado DY, Odejide OO, Bona K, Tucker-Seeley R, Soiffer R.   
    Biol Blood Marrow Transplant. 2016 Aug;22(8):1504-1510. doi: 10.1016/j.bbmt.2016.05.008. Epub 2016 May 13.   
    PMID: 27184627; free PMC article.
  43. Impact of socioeconomic status on timing of relapse and overall survival for children treated on Dana-Farber Cancer Institute ALL Consortium protocols (2000-2010).   
    Bona K, Blonquist TM, Neuberg DS, Silverman LB, Wolfe J.   
    Pediatr Blood Cancer. 2016 Jun;63(6):1012-8. doi: 10.1002/pbc.25928. Epub 2016 Feb 23.   
    PMID: 26913850
  44. Assessment of financial burden as a standard of care in pediatric oncology.   
    Pelletier W, Bona K.   
    Pediatr Blood Cancer. 2015 Dec;62 Suppl 5:S619-31. doi: 10.1002/pbc.25714.   
    PMID: 26700920; review.
  45. Trajectory of material hardship and income poverty in families of children undergoing chemotherapy: a prospective cohort study.   
    Bona K, London WB, Guo D, Frank DA, Wolfe J.   
    Pediatr Blood Cancer. 2016 Jan;63(1):105-11. doi: 10.1002/pbc.25762. Epub 2015 Sep 23.   
    PMID:26398865
  46. Prevalence and impact of financial hardship among New England pediatric stem cell transplantation families.   
    Bona K, London WB, Guo D, Abel G, Lehmann L, Wolfe J.   
    Biol Blood Marrow Transplant. 2015 Feb;21(2):312-8. doi: 10.1016/j.bbmt.2014.10.016. Epub 2014 Oct 23.   
    PMID: 25445021
  47. Economic impact of advanced pediatric cancer on families.   
    Bona K, Dussel V, Orellana L, Kang T, Geyer R, Feudtner C, Wolfe J.   
    J Pain Symptom Manage. 2014 Mar;47(3):594-603. doi: 10.1016/j.jpainsymman.2013.04.003. Epub 2013 Jul 18.   
    PMID: 23870843; free PMC article.
  48. Unmeasured costs of a child's death: perceived financial burden, work disruptions, and economic coping strategies used by American and Australian families who lost children to cancer.   
    Dussel V, Bona K, Heath JA, Hilden JM, Weeks JC, Wolfe J.   
    J Clin Oncol. 2011 Mar 10;29(8):1007-13. doi: 10.1200/JCO.2009.27.8960. Epub 2011 Jan 4.   
    PMID: 21205758; free PMC article.
  49. Racial disparities in the outcomes of communication on medical care received near death.   
    Mack JW, Paulk ME, Viswanath K, Prigerson HG.   
    Arch Intern Med. 2010 Sep 27;170(17):1533-40. doi: 10.1001/archinternmed.2010.322.   
    PMID: 20876403; free PMC article.